Hypermobile Ehlers-Danlos syndrome (hEDS) is an under diagnosed and under-managed connective tissue disorder -- a complicated, complex illness that is multi-systemic.
It affects almost every body system
often in connected yet unexpected ways,
with symptoms that can change every year,
every day, every hour, come on suddenly
and then vanish, or remain chronic for years.
–Diana Jovin, Disjointed
Awareness and Advocacy
Through her journey with hEDS, Averie McCauley, LCSW-BACS, developed a special interest supporting people living with chronic pain and complex conditions like Ehlers-Danlos syndrome (EDS). With years of experience in treating trauma and anxiety, her focus has narrowed to medical trauma and health related anxiety.
Research shows that brain-body psychotherapies can help ease chronic pain symptoms, create clarity around physical sensations of embodied trauma, reframe negative beliefs, improve energy and mood, and help to create a different relationship with pain so that it does not define the person experiencing it.
Dedicated to awareness and advocacy, information and resources are shared with patients, healthcare professionals, and the community on the Instagram account @HypermobilityPsychotherapist.